Interview with Tom: Stroke and Disability 2013
⚠️ This is a bit of a national wake-up call; today, the Stroke Association has declared that stroke care in England is in a 'dire state' (the Stroke Assoc is in a position to issue periodic warnings like this)😟
The charity highlights a deeply worrying situation: too few patients are getting the timely treatment they need, and shockingly, only one third(!) receive the recommended aftercare to physically and mentally recover. Obviously, this means many thousands of stroke survivors are being failed by the system and are not getting the crucial help they need to rebuild their lives.
Prob the most concerning is the 'postcode lottery' that exists for accessing clot-busting treatments. 🗺️ This highly effective treatment can significantly reduce the likelihood of long-term disability, yet your access to it depends simply on where you live. This inequality is unacceptable and has a real, lasting impact on our lives as survivors (and those of the families).
ARNI Stroke Rehab UK reckons we need some government attention and action to improve care and support across the board so that every stroke survivor gets the best possible chance at recovery. #strokecarecrisism#postcodelotterys#ActNowt#strokesurvivort#healthcareS#ARNIstrokerehabare #ARNIStrokeRehab
Very welcome intervention. I hope they collaborate with other leading stroke charties to campaign and put pressure on health authorities to improve Stroke care which is hit & miss presently.
I had my stroke in Sept 2023 - never given clot-busting treatment and it wasn’t even mentioned to me whilst I was in A&E
I had no aftercare at all just a phone call because of covid, did it all myself lots of puzzles at 1 am lol the way i am now is down to me i was appalled with the queen Elizabeth i said id rather crawl in the gutter and croak it.
We called the ambulance 3 times for my dad (the first time well within the 2 hour window) and each time they said it was just vertigo - they then eventually took him in to hospital on our insistence (as we couldn’t move him ourselves) where he then had to wait 12 hours in a chair in A&E before even being seen by a doctor. The scan confirmed he’d had a significant stroke…It makes me so angry knowing that his outcome and recovery could have been so different if the first ambulance crew had taken his symptoms seriously.
Agreed
When you have stroke as category at 2 for ambulance response the whole system needs to wake up. Also research money is very low in comparison to cancer, both devastating one most definitely life changing.
Two hours wait for an ambulance didn’t give a stroke victim a chance … let alone clot busting options.
I've had a stroke and see no one. I was meant to have an appointment this month but it's been cancelled.
This makes me so mad to read this, postcode lottery and it should be universal care and recovery x
I live in wales. Had stroke 2024, never received clot busting drug. Now permanently disabled, im 53.
Dates for the 2026 ARNI instructor course are now available
This is the ONLY FUNCTIONAL REHABILITATION & EXERCISE TRAINING QUALIFICATION CURRENTLY AVAILABLE IN THE UK which teaches experienced therapists and exercise instructors how to continue the rehabilitation path of stroke and other acquired brain injury survivor.
The course if for therapists and exercise instructors who are Level 3 and above or suitably qualified – who wish to teach functional rehabilitation & exercise training after stroke and receive regular recommendations/referrals from the ARNI Institute.
Find out more, and how to register for the accreditation here arni.uk.com/instructors/
2025 prices for the 2026 course if you pay for it in 2025
Exercise: Hip-swing floorstab exercise is from From The Successful Stroke Survivor by book Tom Balchin. It is a precursor to warm up for ‘turning 90 degrees with ease’ and is designed to get you to activate your hips. It builds up your ability to hip-swing. Find out more about it in The Successful Stroke Survivor book.
www.arni.uk.com
#strokerecovery #neurorehab #strokerehab #neuroplasticity #strokerehabilitation #strokeexercise #ARNIstroke #ARNIstrokerehab
29/10/2025 is World Stroke Day
Every Minute Counts: Let’s Act Together and #ActFAST for #WorldStrokeDay
I had the vertigo first they thought I was having a diabetic hypo
ARNI can we also please highlight BALANCE, VERTIGO, Eyesight loss or changes and migraines.....I didn't present as FAST at all and I'm convinced the ambulance staff triaging me initially only used FAST. Hospital sent my husband's friend home after he presented at A&E with migraines and eyesight loss.....only to later discover the stroke. I'm going to be doing my own video later today too, but not all strokes look FAST💔
I agree with both Julie and Bee. My husband didn't show any of the "classic" symptoms. He started to lose sight, had vertigo and a migraine. He told me he was having a stroke. Everything I've ever seen about someone having a stroke, told me he shouldn't have been able to tell me that. If it wasn't for the amazing dr in A&E who realised what was happening and called the local stroke unit, it could have been a very different story.
I had no warnings
⚠️ An important new study from the University of Bath has found that hand gesture controls being currently developed for the next generation of virtual and augmented reality (VR/AR) systems risk excluding millions of stroke survivors.
Researchers discovered that common freehand interactions like pinching, swiping and pressing virtual buttons are often inaccessible, painful or fatiguing for survivors with even mild upper limb impairments.
The study warns that these systems are being designed with a very narrow idea of a typical user, potentially creating new barriers instead of breaking them for those who could benefit most from inclusive technology. For example, the popular ‘pinch to select’ gesture relies heavily on the index finger, a joint often affected by stroke…
Potential solutions include allowing users to remap gestures, amplifying small movements and stabilising cursors for those with spasticity and/or flaccidity.
ARNI Stroke Rehab UK says we need thoughtful design from the start so no one gets left out of the future of tech. 🌍🤝
www.arni.uk.com
#ARNIStrokeRehabUK #Accessibility #InclusiveDesign #VR #AR #StrokeSurvivors #BathUniversity #TechForEveryone
Before my stroke I would or could never have appreciated this exclusion - but overnight disability changes your perspective ultra fast..... I could rant about social construction from my social science days but I know you get it. Normal has a predominant foothold in the able bodied world....
Stroke survivors can sometimes feel that once their NHS-prescribed rehabilitation is complete, their recovery reaches its endpoint. But ARNI Stroke Rehab UK is working to change this through it's innovative models of rehabilitation ranging from intensive in-person therapy to digital neurorehabilitation in the ho#arnistrokerehabukh#strokeexerciser#neurorehabr#strokerehabr#ARNIstrokerehabr#neuroplasticityi#strokerecoveryo#strokesurvivorscanrscan
This will extend the time window (to save function) after stroke from 4.5 hours to 24 hours! 💖 Lumosa Therapeutics has announced positive results from its Phase 2b clinical trials for a thrombolytic compound called LT3001. This novel treatment is showing a massive potential to dramatically extend the therapeutic time window for acute ischemic stroke patients! ⏰
The current standard treatment has a very narrow window of up to 4.5 hours, but LT3001 appears safe and potentially effective when administered up to 24 hours after symptoms begin. This means more people could receive vital treatment to prevent lasting damage.
The data presented at the 17th World Stroke Congress shows LT3001 is still a few steps away from routine clinical practice. Lumosa has approval to conduct a multiple-dose Phase 2 trial in the UK, which is expected to finish enrollment within about a year.
The entire process for new drug development typically takes several more years. ARNI Stroke Rehab UK thinks that an optimistic estimate for its widespread availability in the UK might be around 5-8 years from now (likely in the early 2030’s) assuming all future trials are successful and regulatory hurdles are cleared.
This is a game-changer in stroke research and offers immense hope for the future of patient care! 🙏✨ #ARNIStrokerRehabUK #Awareness #MedicalBreakthrough #LT3001 #ClinicalTrials #Hope
Awesome, eh Bee? 😉 Tom
Can someone just explain this in easy understanding please , especily for clot stokes ?! Ty.
Wow
Wow what an amazing life changer this is for future stroke survivours 👏👏👏
Wonderful news! As an ischaemic stroke survivor this would be amazing
In the meantime we need to make the under 4 hour one we have just now more accessible
Y͟O͟U͟ S͟H͟O͟U͟L͟D͟ T͟R͟Y͟ N͟A͟T͟U͟R͟A͟L͟ R͟E͟M͟E͟D͟Y͟, I͟T͟ H͟E͟L͟P͟S͟ M͟E͟ W͟I͟T͟H͟ N͟E͟U͟R͟O͟P͟A͟T͟H͟Y͟, P͟A͟I͟N͟S͟, L͟U͟P͟U͟S͟, F͟A͟T͟I͟G͟U͟E͟, I͟N͟F͟L͟A͟M͟M͟A͟T͟I͟O͟N͟, R͟H͟E͟U͟M͟A͟T͟O͟I͟D͟ A͟R͟T͟H͟R͟I͟T͟I͟S͟ A͟N͟D͟ F͟I͟B͟R͟O͟M͟Y͟A͟L͟G͟I͟A͟, I͟ H͟A͟V͟E͟N͟’T͟ H͟A͟D͟ A͟ B͟A͟D͟ D͟A͟Y͟ I͟N͟ M͟O͟N͟T͟H͟S͟. I͟’M͟ F͟E͟E͟L͟I͟N͟G͟ P͟R͟O͟D͟U͟C͟T͟I͟V͟E͟ L͟I͟K͟E͟ B͟E͟F͟O͟R͟E͟. I͟ G͟E͟T͟ I͟T͟ F͟R͟O͟M͟ D͟O͟C͟T͟O͟R͟ okojie T͟H͟E͟Y͟ A͟R͟E͟ V͟E͟R͟Y͟ E͟F͟F͟E͟C͟T͟I͟V͟E͟ A͟N͟D͟ N͟A͟T͟U͟R͟A͟L͟ Y͟O͟U͟ C͟A͟N͟ S͟E͟N͟D͟ H͟I͟M͟ A͟ M͟E͟S͟S͟A͟G͟E͟ F͟R͟O͟M͟ M͟O͟R͟E͟ I͟N͟F͟O͟R͟M͟A͟T͟I͟O͟N͟ 👇👇 www.facebook.com/share/1BWgK3YFkG/?mibextid=wwXIfr
Tomorrow is World Stroke Day! 🌍 Held annually on October 29, the day is dedicated to raising global awareness about the serious nature and high rates of stroke, emphasising prevention, treatment and support for survivors.
The event was established by the World Stroke Organisation (WSO) in 2006, and the date remains the same every year.❤️
Let's use tomorrow to share information, support all survivors and honour the incredible healthcare professionals, like ARNI Stroke Rehab UK trainers who make a difference every single day. Together, we can fight stroke and improve lives 💪
www.arni.uk#arnistrokerehabukh#WorldStrokeDayk#strokeawarenesse#fast##PreventStroket#SupportSurvivorsivors
13 months post stroke I had a bilateral mca my speech hasn’t come back to normal but people understand me that’s the main thing before this one over the last 10 years I’ve had 3 tias but I’m thankful to be alive and count my blessings everyday
2. 1 week apart in may of 2022
I no how you feel iv had 3strokes my last one was march 2024 on the opera ting table when I was haveing a new knee and this one has left me a lot weaker than the others and iv had 2 hart attacks as well so I am doing better and I will get their all the best to you and god has my back too
4 years for me
3 years post 2 strokes , luckily recovery was good for me. I do feel heavy footed on the side affected, and stumble sometimes . Living my best life, still working and enjoying my Grandkids and life, God bless us all.
1 year post last stroke and I had one before.
Two and half years Hemorrhagic stroke, I have very heavy, stìff unco-operative right arm hand and fingers, ooh and a funny walk
4 years post stroke
I’m still here 🥰❤️
I had my stroke in 2023. I have good days and bad days. My life has never been the same 😭. I have lost most of my independence , can't travel on my own unless it's local also lost love .
I’m 3 years post hemorrhagic stroke still surviving 🙏
I am a survivor
Survivor here...since January 2024.
TO GOD ALONE BE THE GLORY. 3 AND HALF YEARS AND AM DOING WELL
Stroke survivor I still have my days but God is good I wake up every morning blessed!!
I've had 2, do I get a present? 1 in 2010, 2 in 2020. a few TIA's. I am living a good life. That is my present to me. I hope everybody recovers as well as I have.
I had my Hemorrhagic stroke just about 9 years in 3 weeks. I don't have any use of my right arm and my speak is not so good. But I am here.
13 yrs a stroke and therapy doctors will not help me I'm getting worse thanks to Trenton Missouri !!!
Is this real? Is there really a world stroke day? Have not heard of such so I think campaign not so good. Awareness should really be pushed
Good to know
I hope you remind us tomorrow also
Ok well I didn't know this but I'm a little over a year since my stroke and seizure disorder. Its the day before my birthday.
I had two Strokes in the 90's and 3 TIA's when I went to the Hospital on October 6th,they couldn't figure out if I had a TIA or Vertigo attack but I tell you I'm weaker now and my mobility is shot to the curb, I said this to say whatever it was I'm weaker than I was from the other Strokes. "God has my back"
I am wishing you love, peace and blessings. Have a blessed day.
1 year post 2 strokes. Previous heart surgery 2012 and awaiting heart 2nd heart surgery. Just enjoy what life you have, nobody knows what's around the corner. I'm making as many memories as I can. Even taking a complete rest day for myself is good if that's what my body and mind requires ❤️
If you need some help to start your journey call us 0203 053 0111, or email support@arni.uk.com , to find out if there's a trainer in your area who can help you.
www.arni.uk.#strokerehabilitationa#strokeexerciser#neurorehabr#strokerehabr#ARNIstrokerehabr#neuroplasticityi#strokerecoveryo#strokesurvivorscanrscan
Overcoming a plateau after stroke is difficult, but not impossible. Keeping up with your stroke recovery exercises is still the best way to ensure that you regain more functions.
Most importantly, never give up hope.
www.arni.uk.com
#neurorehab #strokeexercise #strokesurvivorscan #strokerehabilitation #strokerecovery #ARNIstrokerehab #strokerehab #neuroplasticity
I approach my recovery with curiosity - I'm fascinated by my brain's efforts. I also accept that things take longer to 'cement' themselves now but I do notice ☺️ in 2 months I've improved my ability to put a ponytail in - it's still not 'normal' (what is!!!) but it's improving as I continue with the efforts
I had my stroke 11 weeks ago and feel that I've been going backwards for the past fortnight so this post is very timely for me.
