from Catford, South East London, who suffered a severe stroke three years ago.
Cheryl (52)
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- November 16, 2015
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i just asked Dr Tom Balchin from ARNI Stroke Rehab to supply me his thoughts for the day for other survivors like him. He replied by email:
'Ok then Pam! Well, the one thing I find myself telling all my patients (and students and therapists to keep to make sure to keep emphasising) is that ‘knowledge is power’. You know this already, but in the field of stroke rehabilitation as in most other fields there are new advances, major and minor (and tweaks/adjustments to potentially optimise custom solutions for YOU (possibly!) emerging regularly'.
'So I guess one needs to know how to transition into ‘the expert patient’. Your emphasis needs to be on keeping as current as possible. You need to know what you need. And if you find modes appropriate to your needs, trying to investigate them further to work out whether they’re suitable applications to streamline your retraining or self-management'.
Cheers Dr Tom! Helpful advice. Pass this on via the Share button! 😉 😉
#stroke #strokesurvivors #neuroplasticity #strokerecovery #strokearmrehab #neurorehab #strokeexercise #strokerecoveryexercises #exerciseafterstroke #strokerehabilitation #strokerehab #neurorehabilitation
www.arni.uk.com
i just asked Dr Tom Balchin from ARNI Stroke Rehab to supply me his thoughts for the day for other survivors like him. He replied by email:
'Ok then Pam! Well, the one thing I find myself telling all my patients (and students and therapists to keep to make sure to keep emphasising) is that ‘knowledge is power’. You know this already, but in the field of stroke rehabilitation as in most other fields there are new advances, major and minor (and tweaks/adjustments to potentially optimise custom solutions for YOU (possibly!) emerging regularly'.
'So I guess one needs to know how to transition into ‘the expert patient’. Your emphasis needs to be on keeping as current as possible. You need to know what you need. And if you find modes appropriate to your needs, trying to investigate them further to work out whether they’re suitable applications to streamline your retraining or self-management'.
Cheers Dr Tom! Helpful advice. Pass this on via the Share button! ;) ;)
#stroke #strokesurvivors #neuroplasticity #strokerecovery #strokearmrehab #neurorehab #strokeexercise #strokerecoveryexercises #exerciseafterstroke #strokerehabilitation #strokerehab #neurorehabilitation
www.arni.uk.com
A study has proven that by integrating 30 minutes a day of progressive walking exercise into standard stroke rehabilitation (30 to 60 minutes of physical therapy five days a week) stroke patients have a measurable improved quality of life and mobility at hospital discharge compared to control groups.
We stroke survivors know that regaining walking ability, if we can, is an important part of stroke recovery.
Prof Janice Eng, a very well-known stroke rehabilitation specialist and professor in the department of physical therapy at the University of British Columbia in Canada (who was co-PI to this study) stated:
"Although guidelines recommend structured, progressive exercise after stroke, the uptake of these approaches that have sufficient intensity for rehab programs is still lagging. Structured and progressively more challenging exercise, aided by wearable devices to provide feedback on intensity, can help people maintain safe intensity levels that are crucial for neuroplasticity."
The take-away here for us is that a progressively higher-intensity walking exercise programme, COMBINED with standard physical re-training, can significantly improve the quality of life and mobility of stroke survivors.
#stroke #strokesurvivors #neuroplasticity #strokerecovery #strokearmrehab #neurorehab #strokeexercise #strokerecoveryexercises #exerciseafterstroke #strokerehabilitation #strokerehab #neurorehabilitation
www.arni.uk.com
Get wrapped up Get a treadmill Get positive
OK. But post stroke fatigue prevents doing much , physical or mental work, Inc talking.
My husband was discharged from hospital after three weeks to what we were told was a "rehab unit". It was a hospital ward, where he got half an hour a day if he was lucky. At that stage he needed help to stand up and was being moved.on a Sara steady. He insisted on coming home.after 4 weeks. At home he received 5 sessions of NHS physio per week and we did and still do.exercise every day. No longer need the steady or the.commode. Walking with quad stick, but he is getting stronger day by day. Hospital also made us think the arm wouldn't need the attention as it would be "the last thing" to come back, but at home with therapy there is a flicker of hope. Muscles starting to work, his fingers . starting to.move. NHS don't have time on the wards, ultimately the battle us ours and we have to work at it 7 days a week with or without assistance. It's the only way
I believe in pushing hard early on.i I asked them to push me and even gave me weekend sessions I walked out of 11 weeks rehab in a promising state Shame spasticity wrecked me over time
Has the same case but found a help from Dr Osazee
Swimm really helped me walk without a stick well done keep it up you’re doing great
But what do you do when it's cold outside. I can't go outside because the cold will trigger the pain syndrome. And I can't afford a gym which I couldn't get to the gym because then I have to go outside and again the cold would trigger the pain syndrome
The UK 🇬🇧 lags behind with all of this . I was discharged after 4 weeks in re hab . That consisted of walking up & down the corridor when they felt like it . I was sitting on a chair by my bed from first thing in the morning until I got into bed at night !!!! I came home & they knew I lived alone , but I was taking up space in a bed ….., All I have done has been of my doing I have had no help at all. I now go to a multi gym 3 days a week , zoom yoga once a week, trike riding 6 miles once a week & stroke club seated aerobics once a week . I am back driving now , mow my own lawns all be it takes me longer now . I would love to know what I should be doing to improve things !!!!!
The courageous story of four-year-old Isla Parrott is a heart-rending reminder of how suddenly life can change, as she was left unable to speak or stand following a stroke at her pre-school on the 22nd January 🏥...
After being swiftly transported to hospital for an urgent MRI scan, it was discovered that a dormant chickenpox virus in her system had likely triggered the event, leading to a complex battle with inflammation and the need for intensive treatment at Addenbrooke's in Cambridge 🩺✨.
Despite the gravity of her condition and the heavy medications required to prevent infection, Isla's journey is now one of painstaking 'step by step' recovery as her young brain begins the incredible process of finding new pathways to regain her voice and her mobility 🧠🦾.
For the ARNI Stroke Rehab UK Institute, which recognises that whether a survivor is four or eighty-four, the principles of neuroplasticity and 'relentless effort' remain the same. The ARNI Charity works tirelessly to ensure that the specialised strategies needed for functional independence are available to all, supporting the idea that a 'dead end' in clinical settings is often just the beginning of a new training phase. Seeing such a young child face the hurdles of speech loss and immobility reminds us on ARNI Stroke Rehab & Recovery that the human spirit is designed to adapt and overcome, provided we have the right evidence-based tools and the determination to keep pushing forward.
Isla's story is definitely a 'shining example' of bravery that should inspire us all to value every small win in the gym and every hard-won word reclaimed during our own rehabilitation journeys 🌟💖.
www.arni.uk.com
#ARNIStrokeRehab #ChildhoodStroke #StrokeSurvivor #Neuroplasticity #IslaStrong
Where is ARNI, would like my bro transferred there. Local hospital seems to have given up on him! 67yrs old 😪
It's bad enough having a stroke in my 50s but at least I had no issues before this. It's always heartbreaking when children are impacted by chronic conditions and end up losing what should be carefree times of their lives ❤️🩹 I hope she gets beyond this, wee soul ❤️🩹
this is heartbreaking. i really hope she gets the rehab she deserves
Write down a few things (exercises) and start doing them. Then make a pattern of them day by day, which you don’t want to break; because it’s what you do.
And if you're not sure what exercises you should be doing we have trainers throughout the country who can help you. Call us on 0203 053 0111 or email support@arni.uk.com to find out if there's one near you.
www.arni.uk.com
#stroke #strokesurvivors #neuroplasticity #strokerehabilitation #exerciseafterstroke #neurorehabilitation #neurorehab #strokesurvivorscan #strokerecovery #strokeexercise #strokerehab
Thought for today.......
www.arni.uk.com
#ARNIstrokerehab #arnistrokecharity #stroke #strokesurvivors #neuroplasticity #neurorehab
Write down a few things (exercises) and start doing them. Then make a pattern of them day by day, which you don’t want to break; because it’s what you do.
And if you're not sure what exercises you should be doing we have trainers throughout the country who can help you. Call us on 0203 053 0111 or email support@arni.uk.com to find out if there's one near you.
www.arni.uk.com
#stroke #strokesurvivors #neuroplasticity #strokerehabilitation #exerciseafterstroke #neurorehabilitation #neurorehab #strokesurvivorscan #strokerecovery #strokeexercise #strokerehab
whatever your age, think about your stroke recovery exercises as a ‘job of work’. 45 minutes out of a day, and you’re done!
#stroke #strokesurvivors #neuroplasticity #strokerecovery #strokearmrehab #neurorehab #strokeexercise #strokerecoveryexercises #exerciseafterstroke #strokerehabilitation #strokerehab #neurorehabilitation
www.arni.uk.com
I either walk or spin bike every day, or both, energy depending 😅
Dr Tom.....is that an epicondylitis clasp on the arm? I have one and though I don't have tennis elbow at the minute thought this might help stabilise my forearm and wrist a bit - no idea where I think I'm getting this idea from!!!
This is my problem. As I'm getting on my stamina is fading fast. 15 minutes and I'm done. What I do is rest for a while and do another 15 minutes and so on 10 years ago this week it's hard to stay enthusiastic everyday.. I feel like I'm not doing enough to counteract my deterioration I do a lot of everyday things to remain independent but as spasticity gets worse, I find I let my unaffected left hand take over otherwise tasks take too long and I can't fit my essential stuff in. After all this time I expected to be a lot better than I am today especially when I look at videos of what I was capable of. Feel like I'm crying out for help more and more these days and it makes me feel useless. I'm trying desperately to stay positive.
Approximately 40% of stroke survivors experience this difficulty: to comprehend or produce spoken or written language caused by a cerebrovascular accident. In half of these cases the language impairment still persists one year post-stroke. Aphasia has wide-ranging effects on the ability to function and quality of life of stroke survivors and easily leads to social isolation.
If you need help, ARNI SLT Telerehab can now help YOU, right now, wherever you are in the world!
The latest evidence shows clearly that you can conquer aphasia very successfully with the help of speech and language therapy.
And it also shows that SLT Telerehab is just as effective as in-person, face to face treatment.
We have a team of highly experienced low-cost specialist SLTs (all post-grads from Universities such as UCL, the University of Cape Town etc) who are available to help you right now, in your home, via Zoom. You get a one to one hourly service, based around your diary needs, from the comfort of your own home, with a highly experienced specialist speech and language therapist. Please enquire to arni.uk.com/get-remote-speech-language-help-now/ !
#aphasia #strokesurvivors #strokerecovery #strokerehabilitation #strokerehab #aphasiaawareness #neurorehabilitation #arni #exerciseafterstroke #strokeexercise #strokerecoveryexercises #neuroplasticity #ARNIstrokerehab
www.arni.uk.com
My partner, Harry Taylor, has made excellent progress working with his ARNI SLT Olivia via zoom from South Africa. Olivia is an excellent therapist and highly qualified. Since his left brain bleed stroke in 2023 Harry's worked tirelessly to recover the use of his right leg, arm and speech, and is really looking forward to getting an ARNI physical instructor, hopefully soon. He's now in a new band Last Man Standing (no pun intended!), he plays one-handed keyboards and they write and arrange all their own material. He's even co-opted the band's singer, Sharline, to give him singing lessons and this has helped enormously. Before the stroke Harry had written a series or articles for a classic car magazine telling the very amusing story of how he rescued and refurbished a wrecked Austin 1100. Just after the stroke Harry's brother Rob collated the articles and sent around to publishers and The History Press took it on! It's titled When Harry Met Peggy and is due to be published this May. I'm telling you all this to hopefully encourage others to not give up, and to continue being as creative as possible to get that pesky brain working!!
ARNI provides specialist stroke rehabilitation and exercise support after hospital and community physiotherapy finishes.
Call us on 0203 053 0111 or email support@arni.uk.com
#stroke #strokesurvivors #neuroplasticity #strokerecovery #neuroplasticity #strokeexercise #neurorehab #strokerehabilitation
www.arni.uk.com